{"id":30014,"date":"2023-03-30T17:49:21","date_gmt":"2023-03-30T20:49:21","guid":{"rendered":"https:\/\/www.chmafm.com\/welcome\/?p=30014"},"modified":"2023-03-30T18:18:21","modified_gmt":"2023-03-30T21:18:21","slug":"investigate-environmental-factors-potentially-causing-atypical-neurological-decline-group-tells-province-and-feds","status":"publish","type":"post","link":"https:\/\/www.chmafm.com\/welcome\/investigate-environmental-factors-potentially-causing-atypical-neurological-decline-group-tells-province-and-feds\/","title":{"rendered":"Investigate environmental factors potentially causing &#8216;atypical neurological decline,&#8217; group tells province and feds"},"content":{"rendered":"\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1280\" height=\"629\" sizes=\"(max-width: 1280px) 100vw, 1280px\" src=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003-1280x629.jpg\" alt=\"\" class=\"wp-image-30016\" srcset=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003-1280x629.jpg 1280w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003-768x377.jpg 768w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003-1536x755.jpg 1536w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003-1320x649.jpg 1320w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003.jpg 1880w\" \/><figcaption><em>Steve Ellis, whose <em>father is among the patients initially identified as part of a neurodegenerative disease cluster<\/em><\/em>,<em> speaks in support of neurologist<\/em> <em>Allier Marrero during a news conference in Fredericton on Tuesday, March 28, 2023. Image: Screenshot. <\/em><\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Patients and families struggling with symptoms of a neurodegenerative illness are calling for a new investigation into potential environmental causes of the condition.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Their demands come 13 months after the province announced that the &#8220;neurological syndrome of unknown cause&#8221; doesn\u2019t exist.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The provincial Green Party held a news conference on Tuesday alongside people affected by the condition.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">There are now 147 people \u201cdemonstrating a rapid onset of severe neurological symptoms,\u201d according to the group. They said more than a third of those patients are under 45 years old.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em><strong>Listen to the audio report: <\/strong><\/em><\/p>\n\n\n\n<figure class=\"wp-block-audio\"><audio controls src=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/CI_Tantramar-Report-4.mp3\"><\/audio><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Medical testing has shown that many of the patients were exposed to &#8220;multiple environmental toxins,&#8221; said Stacie Quigley Cormier, whose stepdaughter is among the patients.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In particular, she pointed to the herbicide glyphosate, which is widely used in forestry and agriculture.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cWe want to confirm that in recent months, patients have tested positive for multiple environmental toxins, including glyphosate, with detectable levels between four and 40 times the average limit,\u201d she told reporters.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Few details were immediately available, but she said \u201cmany patients have been tested.\u201d&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Her stepdaughter, former Mount Allison University student Gabrielle Cormier, is one of the youngest patients affected by what officials previously called a <a href=\"https:\/\/web.archive.org\/web\/20210428051328\/https:\/\/www2.gnb.ca\/content\/gnb\/en\/departments\/ocmoh\/cdc\/neuro_cluster.html\">neurological syndrome of unknown cause<\/a>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Memramcook-Tantramar MLA Megan Mitton, the Green Party\u2019s health critic, said the province must \u201cremove all barriers\u201d and allow federal health officials to investigate.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The group also called for federal Health Minister Jean-Yves Duclos to \u201cunmuzzle federal scientists\u201d and launch an investigation with federal experts. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">They also accused the provincial and federal governments of \u201cmisrepresenting\u201d their patient files in order to \u201cabandon a public health inquiry.\u201d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Later on Tuesday, Mitton raised the issue in the Legislative Assembly during Question Period, as patients and family members gathered in the visitor\u2019s gallery.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Mitton cited a letter from Dr. Alier Marrero, the neurologist who first identified the contentious cluster.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image alignleft size-full is-resized\"><img decoding=\"async\" sizes=\"(max-width: 600px) 100vw, 600px\" src=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/04\/Mitton.jpg\" alt=\"\" class=\"wp-image-22451\" width=\"419\" height=\"419\" srcset=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/04\/Mitton.jpg 600w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/04\/Mitton-300x300.jpg 300w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/04\/Mitton-150x150.jpg 150w\" \/><figcaption><em>Green Party MLA Megan Mitton speaks in the New Brunswick Legislative Assembly in a file photo. Screenshot: greencaucusvert.ca. <\/em><\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cOn January 30, Dr. Marrero once again raised his concerns about the unexpectedly high number of early onset or young onset progressive neurological syndromes in New Brunswick,\u201d Mitton said.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cWill the Minister of Health get out of the way and allow the Public Health Agency of Canada to launch an investigation?\u201d&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Minister of Health Bruce Fitch said the department had received Marrero\u2019s letter but denied \u201cstanding in the way\u201d of an investigation.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cThere\u2019s a high degree of cooperation between New Brunswick Public Health and the Public Health Agency of Canada,\u201d he said, and the federal agency \u201csupported the results of the provincial investigation.&#8221;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cThat is why the further investigation stopped, because the Public Health Agency of Canada agreed with the findings that were found here in the Province of New Brunswick.\u201d&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In response to a query from CHMA, the federal agency provided an emailed statement saying that it \u201cprovided support as requested by New Brunswick, throughout the investigation, until its conclusion.\u201d&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The federal health agency also \u201cacknowledged the investigation\u2019s findings that this cluster does not represent a neurological syndrome of unknown cause.\u201d <\/p>\n\n\n\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img decoding=\"async\" sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti-1024x682.jpg\" alt=\"\" class=\"wp-image-19279\" width=\"486\" height=\"324\" srcset=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti-1024x682.jpg 1024w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti-300x200.jpg 300w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti-768x512.jpg 768w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti-1536x1023.jpg 1536w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti-1320x879.jpg 1320w, https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2022\/01\/Faculty-MBetti.jpg 1600w\" \/><figcaption><em>Mount Allison professor Matt Betti. Photo: mta.ca<\/em><\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><span style=\"font-size: revert; color: initial; font-family: -apple-system, BlinkMacSystemFont, &quot;Segoe UI&quot;, Roboto, Oxygen-Sans, Ubuntu, Cantarell, &quot;Helvetica Neue&quot;, sans-serif;\">Mount Allison University math and computer science professor Matthew Betti, a specialist in infectious disease modelling, is currently studying the syndrome.&nbsp;<\/span><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">On Tuesday, he monitored the news conference and gave CHMA an update about his research, which involves a survey of New Brunswickers.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">So far, among respondents, the only ones showing symptoms appear to be from the Acadian Peninsula and around the northeastern part of New Brunswick, he said. &#8220;It&#8217;s hard to say there&#8217;s no connection.&#8221;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A <a href=\"https:\/\/www2.gnb.ca\/content\/dam\/gnb\/Departments\/h-s\/pdf\/en\/CDC\/investigation-neurological-syndrome-unknown-cause.pdf\">study published by Public Health in October 2021<\/a> (PDF) concluded that \u201cthere are no specific behaviours, foods, or environmental exposures that can be identified as potential risk factors.\u201d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Betti has criticized the study, noting, for example, that there was no control group allowing for comparison between patients and the wider population. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">He also pointed to disturbing data from the <a href=\"https:\/\/www.canada.ca\/en\/public-health\/services\/surveillance\/blood-safety-contribution-program\/creutzfeldt-jakob-disease.html\">Canadian Creutzfeldt-Jakob Disease Surveillance System<\/a> (CJDSS), which is operated by the Public Health Agency of Canada. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Creutzfeldt-Jakob disease is a rare and deadly neurodegenerative disorder.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The CJDSS publishes a report annually detailing how many \u201ccandidate cases\u201d have been brought to the organization\u2019s attention, broken down by province.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cEven when you control for age&#8230; there&#8217;s still more candidate cases from New Brunswick, and that number has been increasing faster than other provinces,\u201d Betti said.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Environmental factors such as glyphosate and blue-green algae are among the \u201ctop hypotheses\u201d he\u2019s grappling with as a researcher, he said.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The issue first came to public attention in March 2021 with the leak of a memo from Public Health to health care professionals.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It advised them about a cluster of more than 40 people with symptoms similar to Creutzfeldt-Jakob disease. The patients were concentrated around Moncton and near the Acadian peninsula.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">But in February 2022, Public Health released a <a href=\"https:\/\/www2.gnb.ca\/content\/gnb\/en\/departments\/health\/neuro-cluster.html\">final report<\/a> concluding that no cluster ever existed.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The report suggested there were multiple misdiagnoses, and that patients were likely suffering from conditions such as Alzheimer\u2019s disease and post-concussions syndrome.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The patients\u2019 group on Tuesday said many of those diagnoses had already been ruled out. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">&#8220;We lost almost a year of our lives, only to be told to look for answers that we already had,&#8221; Stacie Quigley Cormier said. &#8220;It&#8217;s just smoke and mirrors.&#8221;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">An in-depth report published by <em><a href=\"https:\/\/thewalrus.ca\/new-brunswicks-medical-mystery\/\">The Walrus<\/a><\/em><a href=\"https:\/\/thewalrus.ca\/new-brunswicks-medical-mystery\/\"> magazine<\/a> in October 2021 cited an anonymous source who said federal scientists had been &#8220;muzzled&#8221; at the request of the province.\u00a0<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In January, the news outlet <a href=\"https:\/\/www.canadaland.com\/new-brunswick-mystery-illness-documents\/\">CANADALAND<\/a> reported that New Brunswick abruptly halted joint research between federal and provincial scientists &#8220;without explanation&#8221; in May 2021, citing internal government documents. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The so-called &#8220;mystery disease&#8221; has also made headlines internationally, with articles in publications including the <em><a href=\"https:\/\/www.washingtonpost.com\/world\/2022\/02\/24\/new-brunswick-mystery-brain-disease\/\">Washington Post<\/a> <\/em>and <em><a href=\"https:\/\/www.theguardian.com\/environment\/2023\/mar\/01\/canadian-government-urged-to-test-sick-patients-for-herbicide\">The Guardian<\/a><\/em>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Patients and families struggling with symptoms of a neurodegenerative illness are calling for a new investigation into potential environmental causes of the condition.&nbsp; Their demands come 13 months after the [&hellip;]<\/p>\n","protected":false},"author":18,"featured_media":30016,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_tec_requires_first_save":true,"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_tribe_blocks_recurrence_rules":"","_tribe_blocks_recurrence_description":"","_tribe_blocks_recurrence_exclusions":"","footnotes":""},"categories":[472,492,482,558],"tags":[1185,93,1186,588,466,275],"class_list":["post-30014","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-daily-news","category-front-page","category-weekly","tag-atypical-neurological-decline","tag-chma","tag-glyphosate","tag-megan-mitton","tag-mount-allison","tag-new-brunswick"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Investigate environmental factors potentially causing &#039;atypical neurological decline,&#039; group tells province and feds &#187; CHMA<\/title>\n<meta name=\"description\" content=\"Voice of the Marshes, Campus &amp; Community Radio in Sackville, NB\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.chmafm.com\/welcome\/investigate-environmental-factors-potentially-causing-atypical-neurological-decline-group-tells-province-and-feds\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Investigate environmental factors potentially causing &#039;atypical neurological decline,&#039; group tells province and feds &#187; CHMA\" \/>\n<meta property=\"og:description\" content=\"Voice of the Marshes, Campus &amp; Community Radio in Sackville, NB\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.chmafm.com\/welcome\/investigate-environmental-factors-potentially-causing-atypical-neurological-decline-group-tells-province-and-feds\/\" \/>\n<meta property=\"og:site_name\" content=\"CHMA\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/chma1069\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-03-30T20:49:21+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-03-30T21:18:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.chmafm.com\/welcome\/wp-content\/uploads\/2023\/03\/NeuroDiseaseConferenceMar292003.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1880\" \/>\n\t<meta property=\"og:image:height\" content=\"924\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"David Gordon Koch\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@chmafm\" \/>\n<meta name=\"twitter:site\" content=\"@chmafm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"David Gordon Koch\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.chmafm.com\\\/welcome\\\/investigate-environmental-factors-potentially-causing-atypical-neurological-decline-group-tells-province-and-feds\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.chmafm.com\\\/welcome\\\/investigate-environmental-factors-potentially-causing-atypical-neurological-decline-group-tells-province-and-feds\\\/\"},\"author\":{\"name\":\"David Gordon Koch\",\"@id\":\"https:\\\/\\\/www.chmafm.com\\\/welcome\\\/#\\\/schema\\\/person\\\/6e012d04786198d6c16ce8f95ffff265\"},\"headline\":\"Investigate environmental factors potentially causing &#8216;atypical neurological decline,&#8217; 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